Health Informatics: Current Issues and Challenges    

Health informatics concerns the use of information and information and communication technologies within healthcare. Health informatics and information science need to take account of the unique aspects of health and medicine. The development of information systems and electronic records within health needs to consider the information needs and behaviour of all users. The sensitivity of personal health data raises ethical concerns for developing electronic records. E-health initiatives must actively involve users in the design, development, implementation and evaluation, and information science can contribute to understanding the needs and behaviour of user groups. Health informatics could make an important contribution to the ageing society and to reducing the digital divide and health divides within society. There is a need for an appropriate evidence base within health informatics to support future developments, and to ensure health informatics reaches its potential to improve the health and well-being of patients and the public.

Bath, Peter A. Journal of Information Science (2008). Articles>Knowledge Management>Scientific Communication>Biomedical

Better Reporting of Randomized Trials in Biomedical Journal and Conference Abstracts    

Well reported research published in conference and journal abstracts is important as individuals reading these reports often base their initial assessment of a study based on information reported in the abstract. However, there is growing concern about the reliability and quality of information published in these reports. This article provides an overview of research evidence underpinning the need for better reporting of abstracts reported in conference proceedings and abstracts of journal articles; with a particular focus in the area of health care. Where available we highlight evidence which refers specifically to abstracts reporting randomized trials. We seek to identify current initiatives aimed at improving the reporting of these reports and recommend that an extension of the CONSORT Statement (Consolidated Standards of Reporting Trials), CONSORT for Abstracts, be developed. This checklist would include a list of essential items to be reported in any conference or journal abstract reporting the results of a randomized trial.

Hopewell, Sally, Anne Eisinga and Mike Clarke. Journal of Information Science (2008). Articles>Scientific Communication>Research>Biomedical

Technical Communicators Put the "Public" in Public Health    

How does Web 2.0 fit into the world of public health? STC Fellow, Dr. Thomas Barker discusses the values of social networking in regards to largescale public disasters, such as Hurricane Katrina and the SARS outbreak.

Barker, Thomas. Intercom (2009). Articles>Scientific Communication>Biomedical>Social Networking

XML Initiatives in Pharma

The pharmaceutical industry has been slow to adopt XML until recently. Initiatives in the US and EU, as well as other jurisdictions, have begun that use XML to define important documentation formats as part of the drug product life cycle. In the US the FDA is mandating that drug product descriptions called "labels" be submitted in an XML format called the Standard Product Label (SPL) language by the end of 2005 and similar mandates are being made in the EU and other regions. Since most pharmaceutical companies are international, companies are scrambling to figure out the best method for managing their data in order to meet all of meeting these specific requirements. Also, drug label information will become an important component in the broader set of medical records and prescription standards that are being developed concurrently. This session will describe the roles and status of these standards, initiatives for adoption in the US and the EU, and provide some ideas on strategies for managing data within this complex set of requirements.

Waldt, Dale. IDEAlliance (2005). Articles>Scientific Communication>Biomedical>XML

How Do People at FDA Read Documents On-Screen?

With the substantial move to submitting electronic documents versus paper documents to FDA, it is useful to pause and consider how a regulatory reviewer actually reads a large complex technical document on screen.

Cuppan, Gregory P. Brainery.net (2009). Articles>Scientific Communication>Regulatory Writing>Biomedical

Why the Focus on Review Practices?

improving document review practices is of great concern to many in the biopharmaceutical industry. The reason for this interest can be explained by the following observations which provide some insight as to why review is, or needs to be, a central focus for improving knowledge propagation and dissemination.

Mahajan, Jessica. Brainery.net (2009). Articles>Scientific Communication>Technical Editing>Biomedical

A Grounded Investigation of Genred Guidelines in Cancer Care Deliberations    

Genred documents facilitate collaboration and workplace practices in many ways—particularly in the medical workplace. This article represents a portion of a larger grounded investigation of how medical professionals invoke a wide range of rhetorical strategies when deliberating about complex patient cases during weekly, multidisciplinary deliberations called Tumor Board meetings. Specifically, the author explores the role of one key document in oncological practice, the Standard of Care document. Each Standard of Care document (one for every known cancer) presents a set of national guidelines intended to standardize the treatment of cancer. Tumor Board participants invoke these guidelines as evidence for or against particular future action. In order to better understand how genred, generalizable guidelines like Standard of Care documents afford decision making amid uncertainty, the author conducts a temporal and contextual analysis of the document's use during deliberations as well as a modified Toulminian analysis of a representative sample. Results suggest that, while on its own the document achieves an authoritative, charter-like purpose, it fails to make explicit a link between individual patients' experiences and the profession's expectations for how to act. Implications for how genred, generalizable guidelines—given the way they encourage certain ways of seeing over others—organize and authorize work are discussed, and a modified Toulminian approach to understanding the relationship between claim and evidence in multimodal texts is modeled.

Teston, Christa B. Written Communication (2009). Articles>Scientific Communication>Biomedical>Genre

Ethical or Unethical Persuasion? The Rhetoric of Offers to Participate in Clinical Trials    

Based on a sample of 22 oncology encounters, this article presents a discourse analysis of positive, neutral, or negative valence in the presentation of three elements of informed consent—purpose, benefits, and risks—in offers to participate in clinical trials. It is found that physicians regularly present these key elements of consent with a positive valence, perhaps blurring the distinction between clinical care and clinical research in trial offers. The authors argue that the rhetoric of trial offers constructs and reflects the complex relationships of two competing ethical frameworks—contemporary bioethics and professional medical ethics—both aimed at governing the discourse of trial offers. The authors consider the status of ethical or unethical persuasion within each framework, proposing what is called the best-option principle as the ethical principle governing trial offers within professional medical ethics.

Barton, Ellen and Susan Eggly. Written Communication (2009). Articles>Scientific Communication>Biomedical>Ethics

Gestural Enthymemes: Delivering Movement in 18th- and 19th-Century Medical Images    

This article contributes to recent efforts to add life and movement to rhetorical studies by focusing on the representation of movement in medical texts. More specifically, this study examines medical texts, illustrations, and photographs involving movement by Johann Casper Lavater, G. B. Duchenne de Bologne, Charles Darwin, and Étienne-Jules Marey. By identifying how figures of speech epitomize arguments, this examination follows a shift in the way arguments about movement are represented, a shift from static, visual arguments to gestural enthymemes, as they are named, arguments that are made in movements; these shifts are linked to developments in medical technologies involving photography. These arguments about and using movement attempt to “capture” or express the moments within which life, through the embodied gesture, resides. This extended understanding of the enthymeme broadens current understanding of argument to include delivery, links medical and rhetorical discursive practices, and informs how we make sense of and study the relationships between technology and rhetoric both in the past and present.

Newman, Sara. Written Communication (2009). Articles>Scientific Communication>Biomedical>History

Playing Doctor? Trends in Health Information Seeking on the Web

Evolving and improving technology can improve health and healthcare in a myriad of ways. Equipment that is designed with the user, task, and environment in mind will reduce errors and improve outcomes. New designs make it possible for patients to do things for themselves that previously only doctors could.

Straub, Kathleen. UI Design Newsletter (2007). Articles>Information Design>Scientific Communication>Biomedical

Can Two Established Information Models Explain the Information Behaviour of Visually Impaired People Seeking Health and Social Care Information?    

This study provides a new and valuable insight into the information behaviour of visually impaired people, as well as testing the applicability of a specific and generic information model to the information behaviour of visually impaired people seeking health and social care information.

Beverley, C.A., P.A. Bath and R. Barber. Journal of Documentation (2007). Articles>Scientific Communication>Accessibility>Biomedical

A Grounded Theory Model of On-Duty Critical Care Nurses' Information Behavior: The Patient-Chart Cycle of Informative Interactions     

Critical care nurses' work is rich in informative interactions. Although there have been post-hoc self report studies of nurses' information seeking, there have been no observational studies of the patterns of their on-duty information behavior. This paper seeks to address this issue.

McKnight, Michelynn. Journal of Documentation (2007). Articles>Information Design>Scientific Communication>Biomedical

Use and Outcome of Online Health Information Services: A Study Among Scottish Population    

The purpose of this paper is to report on a research designed to find out how people in Scotland access and use online health information.

Harbour, Jenny and Gobinda G. Chowdhury. Journal of Documentation (2007). Articles>Information Design>Scientific Communication>Biomedical

Health at High Speed: Broadband Internet Access, Health Communication, and the Digital Divide    

The study reported here explored the broadband digital divide in the context of Internet- based health communication. Inequities in the adoption of broadband technology were examined and the comprehensive model of health information seeking (CMIS) was used to make predictions about the implications of broadband Internet for personal health. Data from a population-based survey conducted by the National Cancer Institute in 2005 (N = 5,586) were analyzed. Results showed that those who were younger, more educated, and lived in an urban area were more likely to have a broad- band Internet connection in their home. Furthermore, consistent with the CMIS, those with a broadband connection were more likely to use the Internet for health-related information seeking and communication than those with a dial-up connection.

Rains, Stephen A. Communication Research (2008). Articles>Scientific Communication>Biomedical

Localizing Medical Information for U.S. Spanish-Speakers    

Examines focus group data about Spanish speakers' preferences for health communication. Contrasts known preferences of Mexican Spanish speakers with Spanish speakers in the U.S. Makes recommendations from the data for communicating health information to Spanish speakers within the U.S.

Germaine-Madison, Nicolet St. Technical Communication Online (2009). Articles>Scientific Communication>Biomedical>Localization